ANCA-associated vasculitis (AAV) can impact many areas of everyday life. We would like to hear about your experiences, which is why, this year for Rare Disease Day (29 Feb) & International Vasculitis Day (15 May), we have launched our #InsideAAV campaign!
We are inviting people to share their personal journeys and experiences of living with AAV, whether you have been diagnosed with the condition or are caring for someone who has.
We would like to gather as many stories as possible so that together we can raise awareness of AAV. If you or someone you know would like to get involved, visit our Facebook page via the link below.
Share your story around one or more of these themes and join the #InsideAAV campaign!
AAV can impact many aspects of a person’s life, from family and friendships to planning for the future.
Watch real life experiences of people impacted by AAV and learn more about its effects.
Diagnosis & symptoms: Dr Roberto Padoan
Specialist HCP, Italy [Video length: 1:30]
Diagnosis & symptoms: Steven
GPA patient, Netherlands [Video length: 00:40]
Living with AAV: Immaculada
Mother of an AAV patient, Spain [Video length: 01:30]
Living with AAV: Carmen
GPA patient, Spain [Video length: 00:43]
Setting goals & having a positive outlook: Daniel
AAV patient, Spain [Video length: 00:42]
Setting goals & having a positive outlook: Carmen
GPA patient, Spain [Video length: 00:46]
Family life & AAV: Kinga
AAV patient, Poland [Video length: 01:20]
Importance of support: Dr Roberto Padoan
Specialist HCP, Italy [Video length: 01:48]
Importance of support: Kinga
AAV patient, Poland [Video length: 00:54]
This website is educational, non-promotional and intended for international audiences, excluding residents of the United States, the United Kingdom and Ireland. For more information, contact medinfo@viforpharma.com.
HQ-AVA-2400001 / Date of preparation: February 2024 © 2024 Vifor Fresenius Medical Care Renal Pharma
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